Open Question: Once diagnosed with idiopathic cardiomyopathy am I considered to have this condition for the rest of my life?
Long Term Care - - Posted on January, 27 at 12:01 am
I had some issues in 2009 at the age of 29 while at work. felt horrible, exhausted, short of breath, chest pains, palpitations, and other symptoms. My co-worker took me to the fire department to get checked out and from there I was transported to the ER. My infraction rate had dropped to 40%. Since than I have been on medications such as Coreg, Lisinopril, and Isosobride to name a few. I have had to resign from my job with the City this past April. It has been over a year since I have worked. The last visit to the cardiologist I was told that my infraction rate was back to 60% (low end normal) finally after two years of being on meds. I still get palpitations from time to time and the chest pains are gone thanks to the meds I guess. I will have to take these meds for the rest of my life according to the Doctors. I am concerned with a few things. 1. I have never worked indoors and even though I can do any job asked of me along with my business degrees I have found it next to impossible to find a job inside when I have always worked outdoors. I am over qualified to work in my previous job, but was concerned that if I applied for it and got the position I may cause myself harm and relapse if you will. 2. Even more important, will I be considered to have this “heart issue” for the rest of my life? I ask this because the long-term disability I personally paid for is wanting to review my records to see if they are going to continue benefits. It’s bad enough I have lost my job over this health issue, including my medical and other benefits. Now I am concerned of losing my only income as well. I figured that I would post here in order to hear other peoples stories as to what they have experienced. I’m still attending school in order to gain the education required to find that right job so I’m not to worried about this, things will happen sooner or later. I am more worried about having complications later on at my young age. I have a family to take care of and support and I want to be around later down the road to see my kids grow up. Anyway, that’s my brief story. Lastly, are there any groups out there where someone can become more informed. There are tons of Cancer type groups to become aware of issues and join to meet others with the same issue, but are there any for heart patients?
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